Poster by Greg using my art
This us what he said about this poster:
There is no language to describe the horror of my wife's terrible suffering, the destruction of her days.
There is just this everlasting nothingness, this eternal falling off a cliff into deeper and deeper agony, this never ending throbbing, burning pain, this crushing screaming sensitivity to light, touch, sound, movement, perfumes.
After more than 30 years there is still no possible investigation into the specific physiology of what is going so wrong in her head and body, no full answer, no cure and no hope of a good enough service to meet her complex needs safely, not enough support.
There is just her struggling in the centre of horrendous never-ending waves of symptoms, basically on her own, for even I cannot always help like I want to, without exacerbating things further, all these decades, the two of us daily left to cope with the intolerable complexity and suffering.
And me, doing what I can.
Comments
Post a Comment